How to search the Childhood Cancer Index

You may wish to just scroll through this list, in which case ignore the following instructions. As the list grows it may be easier to search the list in which case read the instructions below. Search Alphabetically - This list of links is presented alphabetically by web address name. If you want to look up an entry under a particular letter then click on the required letter in the Links Menu at the top of the page. Search by Country - The list is also categorised by Country. If you click on the Country in the 'Country and Category' column then you will be taken to the next sequential entry in the list for that Country. So if, for example you want to find all UK links then click through the list from the first entry with UK. The following countries exist within the list and clicking on a country listed below will take you to the first entry for that country in the list -

Australia

Canada

UK

USA

Search by Category - The categories are set up so that you can find sites relevant to your needs. The following categories exist within the list and clicking on a category listed below will take you to the first entry for that category in the list -

Cancer Children	Sites about children who are undergoing treatment, have had cancer or who have died.
General	Sites that are not specifically medical but provide resouces relating to pediatric cancer
Grief	Bereavement counselling and memorial websites
Leukemia	Sites dealing specifically with Leukemia
Lymphoma	Sites dealing specifically with types of Lymphoma
Lymphodema	Sites dealing specifically with types of Lymphoedema (swelling of limbs and body)
Medical	Patient medical pediatric cancer resource
Medical Prof	Resources for pediatric healthcare professionals
Save a Life	These are simple ways to help save a life that do not require financial donation.
Respite	Respite support for families of children with cancer

Links

Links - A

Address and Organisation	Country and Category	Comment
www.acor.org Association of Cancer Online Resources	USA Medical	Acor contains a large collection of internet resources and mailing lists
www.angelfire .com/ms/ prekteach Regina's website	USA Cancer Children	Site dedicated to Zackary Hooper (hepatoblastoma)
www.anthony nolan.com Anthony Nolan Bone Marrow Trust	UK Save a Life	This is an organisation that searches for bone marrow donors. I joined the register after Max's AML treatment but unfortunately have not yet donated although I did once reach the shortlist for 1 marrow donation. Please consider joining this register if you live in the UK especially if you are from an ethnic minority because these marrow groups are very short of available donors. You could make a difference and save a life.
www.aof.org Aidan O' Neill Foundation for the Prevention of Cancer	USA General	General resource containing articles and links

Links - B

Address and Organisation	Country and Category	Comment
www.bloodnet .nbs.nhs.uk National Blood Service	UK Save a Life	The National Blood Service is supported by voluntary blood donations. I started donating blood after Max's Leukemia treatment because I was so aware of the difference that vital blood transfusions made to his treatment. I think that during the period of his treatments he received about 25 pints of blood or blood products. I am greatly indebted to the donors who made that possible and I am trying to repay that debt. I have given 15 pints so far (March 2001) and will eventually give back that and more. If you live in the UK please consider giving blood, you could make a difference and save a life.
www.bravekids .org Brave Kids	USA General	Resource directory, family resources, message board, chat room etc

Links - C

Address and Organisation	Country and Category	Comment
www.cancer bacup.org.uk BACUP	UK General	Organisation that helps patients, families and friends live with cancer. Site has a wide range of resources
www.cancer caresoc. demon.co.uk Cancer Care Society	UK General	Support for people with cancer using telephone and personal counselling
www.cancer help.org.uk Cancer Help UK	UK General	Part of the Cancer Research Campaign. Site dedicated to providing information on cancer
www.cancer index.org Cancer Index	UK General	Guide to cancer related internet resources
www.cancer kids.org Cancer Kids	USA General	Site for helping children with cancer tell their stories to the world
www.cancerlink .org CancerLink	UK General	A resource for over 600 cancer support and self groups in the UK
www.cancernet .nci.nih.gov National Cancer Institute	USA Medical	Support, resources and information regarding all forms of cancer
cancer.med .upenn.edu University of Pennsylvania Cancer Center	USA Medical	Book reviews, links, tips etc
www.cancer online.org Cancer Online	USA General	Support, resources and information regarding all forms of cancer. There will soon be a non frame version of the book on this site
www. cancer resource. co.uk UK Online Cancer Resource	UK Medical Prof	A heathcare professional site run by Linda Scott who is Nursing Development co-ordinator at the Christie Hospital, Manchester, UK
candle lighters.org Candlelighters Childhood Cancer Foundation	USA General	Message Board, links, bereavement support, newsletters etc
candlelighterswwa .org Candlelighter Childhood Cancer Foundation of Western Washington	USA General	Newsletter, Fundraising etc
www.carersuk .demon.co.uk Carers National Association	UK General	Information and support for Carers
www.caringbridge .com/ok/ adamsmith Adam's Journal	USA Cancer Children	Journal of Adam Smith's treatment (AML)
www.centering .org Centering Corporation	USA Grief	Grief Resource Centre with sections on Children Grief, Infant Loss resources, and death of a child
www.chai lifeline.org Chai Lifeline	USA General	Non profit organisation that provides services to seriously ill Jewish children
www.childhood -all.ca/ all_kids/ index.html Childhood ALL	Canada Leukemia	ALL dedicated site containing mailing lists, resources etc
www.childhood cancer.asn.au Childhood Cancer Association	Australia General	Newsletter
www.childrens cancercenter .org The Children's Cancer Center	USA General	Site dedicated to providing children with cancer with educational, emotional and financial assistance to cope with their illness
www.children -cancer.com National Children's Cancer Society	USA General	Patient and Family services, FAQ, Links etc
www.chi online.org Children's Hospice International	USA General	Support network for children with life threatening conditions
www.clic.uk.com Cancer and Leukaemia in Childhood	UK General	Online guide for childhood cancer patients and their families
www.crc.org.uk Cancer Research Campaign	UK Medical	Site committed to research into causes and prevention of cancer

Links - D

Links - E

Links - F

Address and Organisation	Country and Category	Comment
www.fcco.org Families of Children with Cancer	Canada General	Family resource library and other resources

Links - G

Address and Organisation	Country and Category	Comment
www.geocities .com/michael_ nortonrules/ index.html Norton Family Homepage	UK Cancer Children	The journal of Michael Norton who died of a brain tumour (glioblastoma)
www.geocities.com /mugsisme/ yossi.html Yossi Chaim's Homepage	USA Cancer Children	A site dedicated to the memory of Yossi Chaim who died after a long battle against Leukeamia (ALL)
www.geocities.com/ stillgrieve Still Grieving	USA Grief	Site dedicated to grieving parents containing newsletters, information, and a chat room
www. goldribbons .org Gold Ribbons for Childhood Cancer	USA General	Links, and general information
www.griefnet. org Grief Net	USA Grief	37 email support groups and 2 web sites dedicated to overcoming grief
www.grief warehouse .org Grief Warehouse	USA Grief	Site designed for parents who are coping with the death of their child
www.guideforlife .com Guide For Life	UK Grief	Online network for people affected by illness, dying and bereavement

Links - H

Address and Organisation	Country and Category	Comment
www.heavenly lights. homestead .com Heavenly Lights Children's Memorial	USA Grief	Contains links, webrings, grief resources, guestbook, message board etc
www.hlaregistry .org HLA Registry Foundation Inc	USA Save a Life	Bone marrow transplant registry. Please consider joining. Your marrow could be someone else's lifeline.
home.att.net /~ddharmon/ c_links.html Harmon Family Home Page	USA General	Page of childhood cancer links
www.hospice information.co.uk The Hospice Information Service	UK General	Directory of hospice and palliative care services

Links - I

Address and Organisation	Country and Category	Comment
www.icnet.uk Imperial Cancer Research Fund	UK Medical	Large resource for all forms of cancer
www.intel.com/cure/ Intel, United Devices and Oxford University	USA and UK Save a Life	This is a research program sponsored by Intel that is searching for new drugs to treat leukemia and other cancers. You can help save a life by downloading software which will only run while you are not using your PC. The software performs calculations in order to identify molecules that can be effectively used to target cancer proteins. There is no cost to you and there are currently over 350,000 people participating in this research. It is thought that the collaborative use of PC's around the world could cut the research time from 12 years to 5 years. Please, please take part, every little effort in the battle against children's cancer is so important.

Links - J

Address and Organisation	Country and Category	Comment
www.jsfhodgkins .freewebsites .com Jerry Smiles Fund	USA Lymphoma	The story of Jerry Smiles and information on Hodgkin's Disease

Links - K

Links - L

Address and Organisation	Country and Category	Comment
www.leukaemia care.org Leukaemia Care Society	UK Leukemia	Helps relieve the needs of people with leukaemia
www.leukemia. org Leukemia and Lymphoblastic Society	USA Leukemia	General and professional medical resource relating to leukemia
www.lymphoma. org.uk Lymphoma Association	UK Lymphoma	Information and emotional support for Hodgkin's disease and Non Hodgkin's Lymphoma
www.lymphoma. net Lymphoma Association	UK Lymphoma	Information about Non Hodgkin's Lymphoma
www.lymphoedema. org British Lymphoedema Society and Lymphoedema Support Network	UK Lymphodema	Advice to patients with lymphodema, the swelling of limbs and body which can occur as a result of surgery or radiotherapy

Links - M

Address and Organisation	Country and Category	Comment
www.macmillan. org.uk Macmillan Cancer Relief	UK General	Charity working to improve the treatment and care of people with cancer
www. makeachildsmile. org Make a Child Smile	USA Cancer Children	Site dedicated to children with life threatening illnesses
www.make- a-wish. org.uk Make a Wish Foundation UK	UK Respite	The Make-A-Wish Foundation grants wishes to children with life threatening illnesses. We went to Disneyland, Florida, and had a wonderful holiday after Max's leukaemia treatment
www.mariecurie. org.uk Marie Curie Cancer Care	UK General	Charity that provides practical hands on nursing care at home
mel.lib.mi.us/ health/health- disease-cancer -ch.html Mitchigan Electonic Library	USA General	Page of resouces
members.home. net/drshrink/ cancindx.htm Anne's childhood Cancer Resource Page	USA General	Resources for families of children with cancer
www.members.tripod. com/preciousboys/ boys.html Our Precious Angels Aaron & Daniel	Australia Cancer Children	This website is not related to children who have died from cancer but has been included in this category because this website has been created by a family that has lost 2 children who died during or close to birth. The loss and emotions experienced are no different.
www.mwmsites. com/hawc Help Adolescents with Cancer	UK General	Self Help group for teenagers with cancer

Links - N

Address and Organisation	Country and Category	Comment
www.naccpo .org National Alliance of Childhood Cancer Parent Organisations	UK General	Details of UK Childhood Cancer Parent Organisations. Click on the Members button and the Show All button to find a Childhood Cancer Parent Organsiation
www.nccf.org National Childhood Cancer Foundation	USA General	Resources, stories and information on childhood cancer

Links - O

Address and Organisation	Country and Category	Comment
www.outlook- life.org Outlook - Life beyond childhood cancer	USA General	Contains information on insurance and finance, helath issues and concerns, Schools and job issues, FAQ, personal stories, feedback etc

Links - P

Address and Organisation	Country and Category	Comment
www.pasic.org.uk Parent's Association for Seriously Ill Children	UK General	East Midlands Parent's Association
pediatric. about.com pediatrics. about.com	USA Medical	Family pediatric resource with sections relating to childhood cancer
www.pilink. com/nc/becca Becca's Page	USA Cancer Children	Becca Nau's Journal (AML)
www.pilink.com/ wa/ariel marinkovich Ariel's web page	USA Cancer Children	Ariel Marinkovich's Journal (AML)

Links - Q

Links - R

Address and Organisation	Country and Category	Comment
www.rainbowtrust. org.uk Rainbow Trust	UK Respite	The Rainbow Trust has respite centres for families of children with life threatening illnesses. They provide a welcome rest for families from the rigours of looking after a sick child. We stayed at their Leatherhead house three times. The staff are very compassionate and caring and we benefited greatly from these breaks.
www.ricancer council.org Rhode Island Cancer Council	USA Medical	Information and network cancer resource centre
www.royal marsden. org.uk Royal Marsden Hospital	UK Medical	This is an excellent resource. Currently the information relating to childhood cancer can be reached by clicking on the 'Clinical Units' button and then the 'Paediatric' link. This then has a brief overview of children's cancers. The 'Cancer Links' menu option contains an 'A-Z' of useful organisations with a key regarding the type of help that can be given i.e Financial, Support etc

Links - S

Address and Organisation	Country and Category	Comment
www.samalimentato .homestead.com /greenribbon2.html Sam Amimentato's home page	USA Cancer Children	Site dedicated to Sam Alimentato (non-Hodgkins Lymphoma)

Links - T

Address and Organisation	Country and Category	Comment
www.tablearning.org Tab Learning Systems	USA General	A site dedicated to meeting the current and future needs of children with cancer and other life threatening illnesses. This site also references a book called 'Sassy - The face of courage' which can be obtained from www.netstoreusa.com/babooks/059/ 0595004768.shtml
www.tcf.org.uk The Compassionate Friends	UK Grief	Self help group of parents who have lost a child providing befriending support
www.txcancer.org Texas Cancer Data Center	USA Medical Prof	Information for health professionals

Links - U

Address and Organisation	Country and Category	Comment
www.ulmanfund .org Ulman Cancer Fund for Young Adults	USA Medical	Provides support progams, education and resources to benefit young adults and their families who are affected by cancerwww.ulmanfund.org

Links - V

Address and Organisation	Country and Category	Comment
www.vital options.org Vital Options Telesupport Cancer Network	USA General	Call in cancer weekly live radio show simulcast on the web

Links - W

Links - X

Links - Y

Address and Organisation	Country and Category	Comment
www.y2kshack. btinternet.co.uk /booklist.html Sue and Colin's Homepage	UK Medical	Useful list of books relating to pediatric cancer

Links - Z

Jerry Smiles Web Ring

The Jerry's Hodgkin's Disease SiteRing This site owned by Danni R. SiteRing by Bravenet.com

Yahoo Childhood Cancer Web Ring

Copyright © 2001

Address and Organisation	Country and Category	Comment
Address Organisation	Country Category	Comment

Copyright © 2001